Ethical and Practical Implications of the Human Genome Initiative for Family Medicine
S. Van McCrary, PhD, JD, MPH;
Bill Allen, JD;
Ray Moseley, PhD;
Lee A. Crandall, PhD;
Harry Ostrer, MD;
R. Whit Curry, MD;
Marvin A. Dewar, MD, JD;
David Nye, PhD
Arch Fam Med. 1993;2(11):1158-1163.
Major advances in predictive genetic testing resulting from the Human Genome Initiative could change significantly the routine practice of family medicine. Family physicians should be aware that increased genetic information may affect patients' abilities to acquire and maintain insurance and employment and that interested parties will have incentives to seek this information. The social consequences of genetic information, as well as increased health promotion efforts, may raise problems of informed consent and confidentiality. In addition to their ethical implications, these developments will also affect the practice of family physicians in practical ways such as record keeping. We discuss cases that illustrate the potential impact of these emerging technologies on the practice of family medicine.
From the Human Genome Insurance Project, The Medical Humanities Program (Drs McCrary, Allen, Moseley, Crandall, and Dewar), Department of Community Health and Family Medicine (Dr Curry), University of Florida College of Medicine; Florida Insurance Research Center, Graduate School of Business Administration, University of Florida (Dr Nye), Gainesville; and Human Genetics Program, Department of Pediatrics, New York (NY) University Medical Center (Dr Ostrer).
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